IADR


 

Inclusive research

 

 

 

 

 

 

 

 

Inclusive research and marginalised groups

This page lets you download all the resources discussed on the day.

The page is not listed so you have to copy and paste the URL.

If you have documents that you want to share with the rest of the workshop attendees, you can send your examples to macgiolla@dental.tcd.ie and they can be uploaded for sharing.

 

Slides

Addressing the Gap in Evidence for Marginalised Groups 

This file contains a copy of slides demonstrated on the day.

 

Group output

Thanks for sharing

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Accessing participants

Accessible Information Plan

This link brings you to a copy of the NHS England Accessible Information Plan

Talking Mats®

A communication tool developed by speech therapists

Easyonthei

Accessible information bank from easy on the i

Making accessible documents

A helpful guide to producing accessible documents

www.changepeople.co.uk

Picture Banks that are free to download, these can be inserted into large print Word documents to produce ‘easy read’ versions. A guide to making easy read documents is also available as a free download from the CHANGE website

 

Consent

Adults who are not capable of giving informed consent must be included in health-related research unless a good scientific reason justifies their exclusion… Read more here if you want to see the international guidance on those who lack capacity.

Look out for national law and guidance too.

 

An observational study to develop ICF oral health core sets (England)

This page includes a good example of the layered communication involved the consent and information sharing stages of inclusive research. Samples of conventional, easy read and information leaflets and consent forms from the ICF study. Leaflets for carers are also included.

 

Research Ethics

Systematic review on inclusion of children with disabilities in research

This study considers the implications, from a Human rights perspective of using children with disabilities in research rather than including them.

 

Review of edentulism in people with Intellectual disabilities

This study considers the blindspot regarding edentulism and people with intellectual disabilities due to their exclusion from research.

 

Methodology

Project Smile Ireland

Project Smile Ireland demonstrates a mixed methods approach to inclusive methods. This involved people with multiple disabilities including visual impairment and intellectual disabilities in a consensus forming project to establish service goals for Irish Dental services.

 

Dissemination

 

 The Oral Health of People with Learning Difficulties in Sheffield

This page shares accessible reports from the Sheffield Oral Health Survey for adults with ID. It holds an accessible dissemination summary as well as an accessible and standard version of the report arising from this project.

 

Demonstrating benefit

IDS TILDA Accessible videos

The IDS TILDA project showcases how information arising from people with disabilities can be applied to help them directly in an empowered and collaborative process.