Inclusive research and marginalised groups
This page lets you download all the resources discussed on the day.
The page is not listed so you have to copy and paste the URL.
If you have documents that you want to share with the rest of the workshop attendees, you can send your examples to firstname.lastname@example.org and they can be uploaded for sharing.
This file contains a copy of slides demonstrated on the day.
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This link brings you to a copy of the NHS England Accessible Information Plan
A communication tool developed by speech therapists
Accessible information bank from easy on the i
A helpful guide to producing accessible documents
Picture Banks that are free to download, these can be inserted into large print Word documents to produce ‘easy read’ versions. A guide to making easy read documents is also available as a free download from the CHANGE website
Adults who are not capable of giving informed consent must be included in health-related research unless a good scientific reason justifies their exclusion… Read more here if you want to see the international guidance on those who lack capacity.
Look out for national law and guidance too.
This page includes a good example of the layered communication involved the consent and information sharing stages of inclusive research. Samples of conventional, easy read and information leaflets and consent forms from the ICF study. Leaflets for carers are also included.
This study considers the implications, from a Human rights perspective of using children with disabilities in research rather than including them.
This study considers the blindspot regarding edentulism and people with intellectual disabilities due to their exclusion from research.
Project Smile Ireland demonstrates a mixed methods approach to inclusive methods. This involved people with multiple disabilities including visual impairment and intellectual disabilities in a consensus forming project to establish service goals for Irish Dental services.
This page shares accessible reports from the Sheffield Oral Health Survey for adults with ID. It holds an accessible dissemination summary as well as an accessible and standard version of the report arising from this project.
The IDS TILDA project showcases how information arising from people with disabilities can be applied to help them directly in an empowered and collaborative process.